Dazed and Confused

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Topic Title: Dazed and Confused
Created On: 12/02/2006 04:37 PM

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 01/15/2008 08:58 PM

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shontage

Posts: 5

I do not live in the area, but I am certainly willing to travel. I live in central florida. I have a uterus measuring about 18 cm about about 5 large myomas that are distorting my uterus. I desire children and I do not see many options for my situation. I thought I would be a great candidate for the robotic assisted procedure, but my gyn stated there is no room for the instruments to manuver during the procedure and repairing the uterus of this size for future child birth is not to probable. I was really crushed and lost, but I am aware I have to go back to the drawing board. I found a website called Female alternative sugery in California, but I do not know how valid and reliable the information is. Their site states they take out all fibroids using a CO2 and Yag laser (limiting blood loss). Procedure is being compared to the myomectomy. They also state they use something to prevent adhesions. I am willing to travel across the world if the doctor and procedure is repitable. I want to start a family as soon as possible, but I am aware I have to take care of my fibroid issue first. I also wanted to stated that I was first told to watch and wait to see what happens when I was first diagnosed with fibroids. Don't bother them unless they bother you, but they were bothersome. At that time I went from gyn to gyn trying to get different treatment options other that a hysterectomy or myomectomy, which may lead to hysterectomy due to blood loss. Being anemic (iron did not do much) and needing a transfusion prior to this surgury and after, I did not want to loose too much blood and my uterus is taking during the procedure. Now my fibroids and uterus is too large to do inevasive alternative measures. Seeking for answers,Thanks Shonta
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 01/14/2007 05:37 PM

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sherri428

Posts: 8

I spoke with my dr.'s assistant and she said I could not have an epidural because the table tilted and I would need to be intubated.
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 01/09/2007 08:15 PM

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sherri428

Posts: 8

Hey, its me again. I have a few questions about anesthesia. Can one have an epidural during a TLH or must I have a general anethesia?What do you think about DepoDur?Sherri
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 12/20/2006 10:31 PM

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toby459

Posts: 127

Hi Sherri...YES, Absolutely let him take the cervix!!...otherwise you will still have to go in for yearly pap smears as you would still have the chance of getting cervical or endocervical cancer....if there is any residual uterine tissue left on the cervical cuff, it can still cause some monthly bleeding...by all means, get the cervix removed as well!....it is to no advantage to have a laparoscopic supracervical hysterectomy....it's GREAT you found a gyn surgeon that can do Total laparoscopic Hysterectomy...you're going to be very happy with the result....it's common not to have another appt. before your surgery...the surgeon I work with allows patients to go home the same evening if they feel up to it.....you'll probably be able to go home that evening or the next day...good luck....please keep me posted on your progress.....Kim
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 12/20/2006 08:47 PM

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sherri428

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Hi Kim,I had my appointment and it went great. He had a great bedside manner. He recommended I do a total laparoscopic hysterectomy and leaving the ovaries if they looked good. He fills strongly that I do have andenomyosis. I am a little shocked that I will not have another appointment before my surgery on 2/9. I probably need to contact him and ask about my cervix. Do you know if it is recommended to take the cervix when you have andenomyosis.Sherri
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 12/20/2006 12:05 AM

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toby459

Posts: 127

Hi Sherri...Congratulations on getting an appt. with an advanced laparoscopic surgeon....should anything need to be done surgically, this is the type of surgeon you want to have...he will be able to do most anything entirely through the laparoscope. From your previous c-sections and your pelvic pain, only an advanced laparoscopist would be able to give you the best result...you could have scar tissue & adhesions, which can cause severe pain, or it could be endometriosis....let me know how your appt. goes...write down any questions you may have for him, that way you won't forget to ask him should you become nervous & forget...ask him if he knows the internationally known, pioneer of laparoscopy, Dr. Harry Reich...he's one of the guys I used to work with before he retired from working in Pa......Kim
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 12/19/2006 03:22 PM

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sherri428

Posts: 8

Hurray for the system! I went in this am. to see my GYN due to the pain I have experienced the past 2 days. He said we have lots of options but he wanted me to get a second opinion for a Dr. Steege at UNC. He specializes in chronic pelvic pain and advanced laproscopy. It ususally takes months to see this guy and I have an appointment for tomorrow am. Hopefully this guy will shed some light on my situation. He did warn me his bedside manner wasn't great but he is the best in NC.Sherri
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 12/18/2006 06:28 PM

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sherri428

Posts: 8

I have been keeping a pain journal for the past month and I'm wondering about endo as well. I tend to ache from abdomin all the way down to my feet. I am going to talk to him about a lap when I go back on 12/26. I do have another question however. I went back the past few month and looked at the dates I started my period and I am only going about 20 days between bleeding. Also, which concerns me more is the type of bleeding I am doing. I am only passing clots. No loose or thin blood. I feel like my little old uterus is drying up. Any idea as to why I am only passing clots?And another question: Can endo cause spasms? I tend to suffer periodically from horrible spasm in my back and under my ribs at times. They took my gallbladder 18 months ago for that but it still happens.Sherri
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 12/04/2006 10:17 PM

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toby459

Posts: 127

Hi Sherri....too bad you're not closer to Pa....the surgeon I work with can do your hystectomy entirely through the laparoscope..doesn't matter how big the uterus is or how many c-sections you have had...he's brilliant....anyway, the novasure is the newest of the ablation procedures...we just got a few in stock for a trial period, but so far no one has trialed it as of yet....I hear it's good though...just ask your surgeon if he would do a good scraping before the ablation...it's highly recommended by the company for the best results....most women do have the good results....and, you're very welcome....I think it's very important to keep women informed of the latest procedures & technology in the gyn specialty....keep me posted of your progress.....Kim
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 12/04/2006 04:25 PM

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sherri428

Posts: 8

I am in Raleigh, NCIt would be a novasure. Any feedback?The main drawback for the hysterectomy would be that he would only do it abdominally due to my 3 c-sections. I have until 1/4 to make a decision. I truely appreciate you taking the time on this forum. It is great to read unbiased opinions from someone who is familer with all these issues.Thanks Again,Sherri
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 12/04/2006 02:49 PM

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toby459

Posts: 127

P.S....I was wondering if you were close to Pa. I would recommend my brilliant gyn surgeon...if a hysterectomy is needed, he performs hysterectomies and removal of fibroids totally through the laparoscope.....Kim
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 12/04/2006 02:48 PM

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toby459

Posts: 127

Hi Sherri....has your gyn doctor said anything about endometriosis?....that could cause the severe pain you are having...although I have seen many patients with small fibroids that are having bad pain too...I would be conservative and try the ablation first...it's an easy procedure that can have tremendously good results...did your doctor say what type of ablation he is going to do?....there are 4 types: thermachoice balloon ablation, hydrothermal ablation, novasure, and resectoscope ablation....the key to getting a good result is making sure the gyn doctor does a good 3 minute suction currettage or sharp curretting before starting the actual ablation.....it also can be done under IV sedation.....I had the thermachoice balloon ablation done about 1 1/2 yrs. ago....I now have NO monthly bleeding, and no pain...I still get PMS though...wish they would come up with a pill for that!!...LOL.....good luck.....Kim
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 12/04/2006 02:10 PM

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sherri428

Posts: 8

Thanks for your response. I am in Raleigh, NC.Just got back from the GYN and he recommended we try ablation first. I have 2 fibroids showing up on ultrasound. (Anterior 1.3 x 1.17 cm and Posterior 2.5 x 2.4 cm). From everything I have read these should not be causing my pain. I agreed to the ablation but I'm having doubts. The pain I get with my period feels like hard labor. It has become progressivly worse over the last year or so. The bleeding is bad but the pain is worse. I am having second thoughts about ablation. It seems like so many women on these different forums end up having the hysterectomy anyway.Any thoughts on ablation?Thanks, Sherri
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 12/03/2006 10:06 PM

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toby459

Posts: 127

Hi Sherri...it's always good to hear of a female taking an active part in her gyn medical care...no, not everyone with adenomyosis has an enlarged uterus...I would not worry about the multi follicles on the ovary...that's not a big deal...the fibroids could be causing your pain...depending on how many you have, and how large they are, you might want to ask about a laparoscopic myomectomy...if you are finished with child-bearing, you might consider laparoscopic hysterectomy.....may I ask what state you are in?....thanks, Kim, RN, BSN, Gyn Team Leader, Surgical nurse.
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 12/02/2006 04:37 PM

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sherri428

Posts: 8

Hi,I am a 41 year old female with 3 kids by c-section.I'm trying to get a better handle on things before I return to GYN in a few days. Alot has happened over the past few weeks and I'm left with more questions than answers. I have had the most painful periods and heavy bleeding (with clots) for the past five years. It has been gradually getting worse. About 2 weeks ago I woke up with a knife like pain in my back and the next day I started and had the worst menstrual cramps I have ever had. It felt like I had been given petosin. At first I thought it was a kidney stone. After a CT scan they ruled out kidneys and pointed to fibroids and calcification of ovaries. Several days later I had an ultra sound;one abdominal and one vaginal (they filled my bladder). I took the final report to GYN and he did an endometrial biopsy. After that he mentioned fibroids could be causing my problem and probably need a hystectomy. He mentioned other treatments but I was out of it and scheduled a follow up for this week. I found the condition adenomyosis on the internet. It sounds like me however my uterus doesn't measure large (EV8.3 x 4.9 x 6.0 cm and TA10.4 x 5.1 x 6.6 cm). I was also was messing around with the films and saw the preliminary report on there. It stated the fibroids of course but also mentioned multi follicles on both ovaries. The largest one being 1.3 cm. However the final report states ovaries unremarkable. Is it normal to have multi follicles on both ovaries? Should I show this preliminary report to GYN? Does everyone with andenomyosis have an enlarged uterus? I will probably be making some major decisions real shortly and just want as much knowledge as I can get.Thanks, Sherri
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